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Ann
  • F
  • 48
  • NH, US

10 level
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About Me

I am a very out going 40 something female. In 2006 I was diagnosed with RSD/CRPS which is rated the number one most painful disease there is. The way i can tell you how i feel is imagine someone cutting off one of your limbs and pouring gasoline inside your body then setting it on fire...well that is what i live with. Sadly there is no cure. It is not well known even to the medical society nothing worse than when i go into the hospital screaming, and they have no clue what to do! They have to look it up. Or they think its all in my head. It all came about due to a fall, and broken bones, and several surgeries, my life has never been the same. Please take a minute to look it up, and research it. I was lucky I had a Dr that knew what i Had right away, some people go years, and years before getting diagnosed properly while in the the mean time they hear they are drug seeking, or its in their head. Do research because god forbid id it happens to you or a loved one at least you have an idea what you may be dealing with.

I'd like to meet

New friends that are true to themselves and others. Others with RSD/CRPS.

Activities

I love fishing, snorkeling, scuba diving, camping, ball games, cook outs, travel, cruises, beaches. Auctions, fairs,flea markets, yard sales. some i can no longer do.

Interests

I have many, but again sadly my ability to do much of anything has been taken away from me. I love the red sox, time with friends and family, i love electronics...lol i guess i have become a gadget geek as my friends call me. Love my computer, and my kindle. And my dog scottie, who is my rescuer.

Favorite Music

It varies really but no rap, opera, and rock music that is screaming

Favorite TV Shows

i like the news programs, law & order suv, sons of anarchy, some reality shows.

Favorite Books

I love to read I have been shut off of buying books, i have so many so i bought a kindle... now i can have all the books i want and it does not cause any "CLUTTER". as if it ever did anyways. Lately i have been reading and enjoying books that have to do with things that very well could happen like .."one second after" EMF attack awesome book.

Favorite Quotes

Greater love has no one than this,than to lay down one's life for his friends. John 15:13

Favorite Heroes

Jesus, My Aunt who always taught me to speak my mind, but to be respectful. treat others the way you want them to treat your grandmother.

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  • Reggie☮ 2012/05/04 05:27:11
    Reggie☮
    Hi Ann, nice to meet you :) thank you for the friend add
  • theguerres 2012/03/29 21:40:46
    theguerres
    Yes- brain is starting to come out of the fog LOL! That should be fun for you going to the EXPO. I want to see pictures after you go of all the booths etc. I did enjoy the pic and love this one too '-) Okay- off to see the pain management doc now. Have a nice day.
    Hugz N Luvz Sis <3
  • theguerres 2012/03/29 18:02:53
    theguerres
    OMG!! I am totally having an RSD brain Fart LOL! I don't know why I thought you lost the info or something, so I searched for it on your page to repost it for you here LOL! I'm glad you will be able to attend. What will you be doing to help out there? Wish I was closer so I could go too. Excited to hear about what you will be doing and how it all goes, so let me know. Hugz and sorry about the brain fart. Got to laugh at myself LOL!
  • theguerres 2012/03/29 17:58:48
    theguerres
    BTW- Thanks for posting this pic of all of us. What great memories that will always be treasure <3
  • theguerres 2012/03/29 17:51:04
    theguerres
    Here is what I sent you... Is this close to you? Thought of you when I saw it. Maybe you can attend? Hope you are doing good. Miss and love you ♥ XXOO
    This may be something that you Arizona girls may be interested in. Barby Ingle is the founder/director of the Power of pain Foundation. The RSD(S)-CRPS Advisory Info and Support Group is working with the POPF to raise awareness. I am doing a Woman's Expo on April 19th here in Nashua, NH and a Health and Wellness Fair in October. Twinkle Wood-VanFleet is doing a balloon release in the Sacramento area in July.

    Barby was put into remission with ketamine and has books on Amazon that describes her ordeal.

    Barby Ingle
    I'm so excited: just got this from my doctors assistant:

    I am excited to let you know we will be performing the Ketamine boosters at the Scottsdale Treatment Center as early as the week of March 19th . You may know Dr. Siwek’s dream to open a hospital fully dedicated to the treatment of pain has finally become a rea...
    See More... I hope you will be able to go. I was talking to Wanda the other day. She was telling me that you grew up next door to her husband and very close to her as well. Such a small world we live in!!

    I don't mind the taste of the Ensure drinks as long as they are cold. Problem is, since getting Scleroderma ...
    Here is what I sent you... Is this close to you? Thought of you when I saw it. Maybe you can attend? Hope you are doing good. Miss and love you ♥ XXOO
    This may be something that you Arizona girls may be interested in. Barby Ingle is the founder/director of the Power of pain Foundation. The RSD(S)-CRPS Advisory Info and Support Group is working with the POPF to raise awareness. I am doing a Woman's Expo on April 19th here in Nashua, NH and a Health and Wellness Fair in October. Twinkle Wood-VanFleet is doing a balloon release in the Sacramento area in July.

    Barby was put into remission with ketamine and has books on Amazon that describes her ordeal.

    Barby Ingle
    I'm so excited: just got this from my doctors assistant:

    I am excited to let you know we will be performing the Ketamine boosters at the Scottsdale Treatment Center as early as the week of March 19th . You may know Dr. Siwek’s dream to open a hospital fully dedicated to the treatment of pain has finally become a rea...
    See More... I hope you will be able to go. I was talking to Wanda the other day. She was telling me that you grew up next door to her husband and very close to her as well. Such a small world we live in!!

    I don't mind the taste of the Ensure drinks as long as they are cold. Problem is, since getting Scleroderma of the esophagus and intestines they don't help. Even eating fatty foods don't help. They finally figured out why I don't absorb any nutrients from food I eat and it's the Scleroderma. Having a hard time even using the feeding tube now too, since when I use it now I bloat up like I'm preggers and am doing that as well when eating by mouth. Last week I was only able to get in a can and a half. So weight is now down again at 84, which is only 1 lb away from when I went into the hospital in Nov. It is what it is and I can only hope, wish and pray, pray, pray that things will get better. God is good and has answered many of my prayers lately so I just have to try to stay as positive as I can be and be happy with the people I have in my life and the things that make me smile. Love you and I'm glad you are doing as good as can be. Is the weather warming up for you yet? I know how you love sitting outside on your deck enjoying the suns rays. Poor Scottie, I hope his ear infection goes away soon. Nikita gets ear infections a lot. Send my love to Michelle and sending you love too. Hugz
    (more)
  • theguerres 2012/03/25 02:49:33
    theguerres
    Honestly, not doing better but I am tough and am hard to break. Just worn out, tired and scared... Honestly wondering how long my body can survive weighing nothing like I do. Dr.'s are baffled and when I ask them 'how much more can my body take living at the weight I am?' They just look at me and Pat like they have no idea. That's what scares us the most. But life is good other than that. I have a beautiful family and friends and that's what is most important. It's going to rain anytime now and the wind is a blowin. We need t he water. How's the house, dog and Sweet Michelle? I'm confused about what info you are talking about... EXPO? I think I may be having an RSD brain fart, cause I don't know what you are talking about LOL! Love ya Sis
  • theguerres 2012/03/24 16:40:40
    theguerres
    Miss you. Hope things are going good for the most part with you and your health. Think of you all the time <3
  • jt 2012/01/27 04:32:27
  • Delta 2012/01/25 03:09:03
    Delta
    Thanks for asking me to be friends. sorry to hear about your disease process and I sincerely hope you find relief from your discomfort and pain.
  • theguerres 2011/02/22 15:47:43
    theguerres
    Yes, crazy is right! Wish it was crazy good too. I will tell Lorie abou t Skype and see if we can't get her a video camera somewhere used for cheap. That's how I got mine for this computer altho Pat likes to use the video camera instead. Maybe if the one I have is compatable with her computer I can just send the one I have. I have to ask Pat 1st tho. I have Yahoo, but have yet to use it. I really like this sight too. Lots of interesting things to read about and polling too which I like. I like to know what others think about certain situations. You and Boarders. They should just give you free coffe/tea and snacks LOL!
    Miss and love you too XOXO
  • theguerres 2011/02/22 15:17:11
    theguerres
    It is a great place to restimulate my brain. I am glad we had a chance to talk. Haven't talked to Lorie lately either. Maybe when the weather warms up again in the spring and summer we will all be feeling better and will be back to conversing like we used to. Wishing you a nice day. Hugz N Luvz
  • theguerres 2011/02/19 06:23:08
    theguerres
    Hey sis, thanks for inviting me to this site. It looks very interesting for sure! I pray that you are doing okay and that your pain and rest is well. I am having a hard time still but doing a bit better I suppose. It was really nice talking to you the other day, It has been way too long, but I understand like you, that things have been more painful for all of us with the weather. RSD and cold UGH!
    Love you
  • TVC15 2010/11/25 11:53:57
    TVC15
    I have RSD which comes and goes. I'm also a Type 1 Diabetic with only two-thirds of my pancreas left and I have some other problems. I voted for President Obama and am very proud of his efforts on healthcare reform. I find your photo of our president (a former constitutional law professor) depicted as deleting items on the bill of rights ill informed and offensive, no matter what your medical problems there is no excuse for this level of ignorance.
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info

  • Ann
  • Female
  • NH, US
  • 2010/09/30 19:19:30
  • 2012/12/05 08:07:56
  • 48
  • In a relationship
  • Gay/Lesbian
  • Virgo
  • Friendship
  • Some College
  • Not-Employed
  • Healthcare
  • $25k - $50k
  • Yes
  • No
  • Christian
  • No thank you
  • Other
  • White/Caucasian
  • Love Handles
  • 5 feet 7 inches

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