If you tested Positive for a fatal genetic disease would you want to know?

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If you tested Positive for a fatal genetic disease would you want to know?

by tara Posted July 13, 2007 01:03:19

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+5 raves chilton~In God I Trust~~ July 13, 2007 01:28:57

Answered: Yes in hopes to prevent it
Yes. It's happening in our extended family to 5 people. There is no prevention or cure for Huntington's but I would want to know to start early treatment to retard it. Also my relative with this didn't get diagnosed until AFTER one of her sons' wife and a grandchild became pregnant. They possibly would have made another choice.
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Gwynodd November 19, 2008 20:26:01

Answered: Yes in hopes to prevent it
Of course I would want to know and then find a specialist that could possibly help to either cure the disease or at least put it into remission.
Emily MCRmy [FTDM!!!!] May 20, 2008 07:57:10

Answered: Yes in hopes to prevent it
I would want to know.
If I'm going to die of something like that, I want to know.
IsraeliteRian84 March 04, 2008 06:05:22

Answered: Undecided
Yes, I dont see why not!?
<--That guy December 11, 2007 19:05:10

Answered: Yes in hopes to prevent it
I wouldn't want to have a child and have it live with an affliction.
BoyOfTheEnders November 07, 2007 06:00:34

Answered: No, I'd just worry about it and it would affect my everyday life
I'd rather go about life, enjoy what is left... then die without warning...like:
bye bye!
Amanda October 02, 2007 20:22:48

Answered: Yes in hopes to prevent it
I have a baby and if it's genetic, I don't want her to have to go through it. It'd break my heart.
Spider20 August 23, 2007 21:59:07

Answered: Yes in hopes to prevent it
Maybe somewhere down the line, the docs could find a cure, and every bit of research helps......
Hola August 20, 2007 21:32:10

Answered: Yes in hopes to prevent it
I would like to know even if it couldn't be prevented. I would not want my future family to inherit it...
Patrick August 02, 2007 05:06:52

Answered: Yes in hopes to prevent it
I would not want to pass it on to my children.
+1 raves
jackrorabbit July 13, 2007 15:50:43

Answered: Yes in hopes to prevent it
But there are very few that they can test for. Huntington's disease is
one of them, and due to my tremor attacks, I did get tested. Thank God
is was negative, but I wanted to know, so I could prepare for whatever
I would need to.
+1 raves
Marianne July 13, 2007 03:38:47

Answered: Yes in hopes to prevent it
always better to know, and the earlier the better
+1 raves
aunteek July 13, 2007 02:29:17

Answered: Yes in hopes to prevent it
I would want to know so my family can prevent it in them. Maybe if young enough you would choose not to have children.
+1 raves
jackror... to aunteek July 13, 2007 15:51:46

Yup, I have Fibromyalgia, which is genetic dominant, so we will not
have any more children, but we might adopt in a year or so. Probably an
older child in an orphanage.
+2 raves
Jenni July 13, 2007 01:45:29

Answered: Yes in hopes to prevent it
And to make sure that I prioritized my valuable time more carefully.
+5 raves
chilton~In God I Trust~~ July 13, 2007 01:28:57

Answered: Yes in hopes to prevent it
Yes. It's happening in our extended family to 5 people. There is no prevention or cure for Huntington's but I would want to know to start early treatment to retard it. Also my relative with this didn't get diagnosed until AFTER one of her sons' wife and a grandchild became pregnant. They possibly would have made another choice.
jackror... to chilton... July 13, 2007 15:52:42

I was tested for it and it was negitive, so I understand your pain.
chilton... to jackror... July 13, 2007 16:17:31

Thanks. I never knew there was a genetic link with fibro. I have it to. A doctor here told me it's better not to tell md's I have it because 'it's the new catch-all diagnosis and most people see it as a psychiatric issue'! A real difference in some areas of the country! I think you're getting good info and treatment, maybe good for you!
+1 raves
jackror... to chilton... July 13, 2007 16:24:18

Yup fibro is genetic, and they have found the link, but not the gene.
The only therapy is trying to get good sleep and getting all of the
toxic points worked on by a theripist weekly to get them out of your
system. There is too much infomation out about fibro and myofacial pain
syndrome to deny it any longer. In Europe it is an automatic disability.
+1 raves
chilton... to jackror... July 13, 2007 16:29:24

Amazing.good for Europe. I've done quite a bit of the therapy and it works better for me than anything else.
+1 raves
tara July 13, 2007 01:09:50

Answered: Undecided
depending if it was known for sure that it would show up later on. If I'm a carrier, but it doesn't mean I'll get it myself then I wouldn't really want to know, but then again I would want to know the odds of passing it to my children.